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Did You Know? Learn about Children’s Special Health Care Services

Did you know… Indiana has a program called Children’s Special Health Care Services (CSHCS).  CSHCS provides additional medical coverage for children under the age of 21 who have serious, chronic medical conditions such as autism, cerebral palsy, chromosomal disorders, complicated medical conditions, and many others.  This is a great program because it can provide coverage…

Our Voice Counts!

My experience at this year’s Disability Policy Seminar was very good, just to see people come together for a very good time. It is very good just to sit and learn and listen about all the discussions and things going on across the country. Being in DC is also very good. I look forward to…

When families seek providers, what will they find?

A few days ago I read this wonderful blog, Our College Tour, from a mom looking for adult services for her son that will start him on his journey to independence. It made me think of all the stories of so many Hoosier families that are starting that journey right now.  Each month approximately 200…

Ned’s Sister

By Kate Barrow, “Ned’s Sister” There is a long running joke among my friends and family that started when I was a kindergartner in Charlottesville, VA.  My younger brother was in the pre-k class for children with special needs at the same school, and on occasion some of the fifth graders would help out in…

Taking the Fear Out of Medicaid, SSI Eligibility – Special Needs Trusts

Becoming eligible or remaining eligible for government benefits can be a scary prospect.   The Arc Master Trust can make this prospect much less scary. The resource limit for Medicaid is $1,500 and the limit for SSI is $2,000. If you have more money than this in bank accounts (CD’s, checking, savings, etc), savings bonds,…

Advice from Someone Who was Bullied

On July 26, I went to the Bullying Conference, sponsored by the Children’s Coalition of Indiana. They talked about the kids in the school and how they are getting bullied in the school, in the cafeteria. I look around me and I know what it is like to be bullied. And it is not fun. The…

Starting the Conversation

How do you best start a conversation? The Indiana Family and Social Services Administration (FSSA) started a conversation several weeks ago about an opportunity Indiana could take through the Affordable Care Act that offers state incentives to serve more people in the community and fewer people in nursing homes and other institutions.  This effort would…