Helpful Resources

Link to Publications & Fact Sheets
Link to Informational Videos
Link to The Arc of Indiana Academy

Resource Guides

COVID-19 Information and Resources Page 

Acronyms & Definitions Booklet 

FINDER – Provides a comprehensive range of resources for people with disabilities, families, and providers.

Family and Social Services Administration Resource Guide 

Medicaid Provider Search

Summer Camps

Disability Advocacy & Legal Services

Ability Allies (formerly Disability Legal Services Indiana) – Provides free and low-cost legal services to children and adults with disabilities.

Indiana Disability Justice – Supports statewide efforts to prevent violence and enhance independence and wellness among people with disabilities.

Indiana Disability Rights – Works to protect and advocate for the rights of people with disabilities, including pursuing legal and administrative remedies on behalf of people with disabilities.

Advocate’s Guide on Assisting Victims and Suspects/Defendants with Intellectual Disabilities

Protecting Your Child from Sexual Abuse – A Guide for Parents of Children with Special Healthcare Needs

Nursing Home Abuse Guide

National Center on Shaken Baby Syndrome

Future Planning

The Arc Master Trust

INVestABLE Indiana – Manages Indiana’s ABLE Act program.

Miller Trust – Holds excess income to assist individuals in qualifying for Medicaid long-term care services.

Guardianship and Alternatives to Guardianship

National Resource Center for Supported Decision Making 

Supported Decision Making

FAQ for Representative Payees

Assistive Technology

Easterseals Crossroads Assistive Technology Center – Provides assistive technology, equipment and services.

INDATA – Assistive Technology – Provides a variety of assistive technology services.

PATINS Project – A state-wide technical assistance network that connects Indiana’s education agencies to accessible educational materials, assistive technology, professional development and technical support.

Associations & Organizations 

The Arc of the United States

Self Advocates of Indiana – A statewide organization run by and for people with developmental disabilities.

American Association on Intellectual and Developmental Disabilities – Offers a broad range of information regarding disability, including online journals, governmental policy information and online seminars.

ArtMix – Works to transform the lives of people with disabilities through the creation of art.


  • ActEarlyIndiana – Provides resources to understand the early signs of Autism Spectrum Disorder and locate services, including ABA providers.
  • Autism Society of Indiana – State chapter of the Autism Society of America.
  • Hands in Autism – Offers training, technical support and resources for implementation across home, education, and community settings.
  • Early Autism Evaluation (EAE) Hubs – The EAE Hub system provides screening, diagnosis, and management of young children with autism.

Best Buddies Indiana – Dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.

Brain Injury Association of Indiana – Dedicated to reducing the incidence and impact of brain injury through education, advocacy, support, prevention and by facilitating inter-agency commitment and collaboration.

Center for Deaf and Hard of Hearing Education – Works to support parental choice, including the full continuum of communication options.

Centers for Independent Living – Cross-disability nonprofit agencies operated by individuals with disabilities across Indiana.

Center for Youth and Adults with Conditions of Childhood at Riley Hospital – Helps youth ages 11 to 22 with chronic health conditions move from seeing pediatric physicians to adult care physicians.

Council for Exceptional Children (CEC) – Dedicated to improving the educational success of individuals with disabilities and/or gifts and talents.

Indiana Council for Exceptional Children – A community of educators and partners in learning dedicated to advancing the success of students with exceptionalities in Indiana.

Down Syndrome 

Epilepsy Foundation of Indiana – Works to help individuals overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

FASD United – The national voice on Fetal Alcohol Spectrum Disorders

Fragile X

Governor’s Council for People with Disabilities – Works to advance the independence, productivity and inclusion of people with disabilities in all aspects of society through planning, evaluation, collaboration, education, research and advocacy.

Hydrocephalus Association – Provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them.

Indiana Association of Behavioral Consultants – Promotes effective, ethical and quality behavioral services.

IN-APSE – Works to improve and expand integrated employment opportunities, services, and outcomes for persons experiencing disabilities.

Indiana Family to Family – Supports families who have children and youth with health care needs and/or disabilities through education, outreach and community partnerships.

Indiana Institute on Disability and Community – Works to build community capacity through collaboration with institutions of higher education, government agencies, community service providers, persons with disabilities and their families, and advocacy organizations.

IN*SOURCE – Provides parents, families and service providers in Indiana information and training regarding  effective educational programs and appropriate services for children and young adults with disabilities.

NAMI Indiana – The state organization of the National Alliance on Mental Illness

National Alliance for Direct Support Professionals

PKU/National PKU Alliance – Works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.

Prader-Willi Syndrome Association – Provides support services and information for families and people with PWS.

Rett Syndrome/National Rett Syndrome Association – Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.

Sheehan Charitable Foundation – Provides financial assistance to families seeking support for a loved one with a disability age 17 or younger. Past awards have included wheelchairs, wheelchair vans, and home modifications.

Special Olympics Indiana – Provides year-round sports training and athletic competition for children and adults with intellectual disabilities.

United Cerebral Palsy – UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.

Work to Include – Promotes employment for Hoosiers with disabilities.

Williams Syndrome Association – Provides resources for people and families living with Williams syndrome as well as doctors, researchers and educators.

Housing, Utility & Emergency Assistance

Call 2-1-1, a free and confidential service that helps Hoosiers across Indiana find the local resources they need. Dial 2-1-1 to connect with a navigator 24 hours a day, 7 days a week.

Township Trustee: For emergency assistance and information on local resources contact your township trustee. Search for your township trustee at:

Indiana Housing and Community Development Authority: 

  • Section 8 / Housing Choice Vouchers
  • Emergency Rental Assistance
  • Renter’s Rights
  • Energy Assistance
  • Weatherization/Energy Conservation
  • Foreclosure Prevention

Indiana Housing Now: 

  • Rental Assistance Resources
  • Home Repair or Modification
  • Housing Resources for Seniors
  • Housing Resources for Persons with Disabilities
  • Temporary and/or Emergency Shelters
  • Domestic Violence Shelters
  • Shelters for Veterans

Locate subsidized or low-income rentals at: HUD Rental Help

The Indiana Emergency Rental Assistance (IERA) Program provides financial assistance for rent and utility payments for Indiana residents whose income has been negatively impacted by the pandemic. Visit To apply to the IERA Program for the first time, and to find additional resources call 2-1-1.  If you are in need of emergency rental assistance, be sure to mention “rental assistance” to the 2-1-1 operator.

Housing Discrimination: Indiana Fair Housing Commission –

Eviction-focused legal help:

Information on sealing evictions:

Utility assistance: Energy Assistance Program

If you have Down syndrome, you may be more likely to get Alzheimer’s disease. The ABATE Study is testing an investigational vaccine for Alzheimer’s. Complete information in the links below.

ABATE Study Brochure
ABATE Study Flyer 

DDRS Advisory Council

February 21, 2024
Meeting Agenda
DDRS Advisory Council Slides 
BDS Data Slide

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