Share Your Story
2024 Medicaid Waiver Changes

On January 17, 2024, the Family and Social Services Administration (FSSA) announced proposed changes to Indiana’s Medicaid Waivers. The most significant change would impact spouses and parents of minor children who have been paid to provide attendant care.

Unless changes are made, effective July 1, 2024, parents of minor children will not be allowed to be paid for attendant care through the new Health and Wellness Waiver (H&W) and Traumatic Brain Injury Waiver (TBI). Instead, they would be required to transition to Indiana’s Structured Family Caregiving program at a far lower rate of pay. FSSA has clarified that guardians of adults can continue to be paid up to 40 hours a week.

This change will devastate families, harm people with disabilities, and increase the risk of institutionalization.
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Share Your Story

Many outside the disability community do not understand the impact these proposals will have on children with significant disabilities and their families. To highlight the impact of these proposals,
The Arc of Indiana is collecting stories. Individuals and families can submit a written story or record up to a three-minute video through the links below. Families can share how these proposals will affect their loved ones and their daily lives. Please note that the platform we are using was created by The Arc of the United States for their Medicaid Story Telling campaign, so you will see prompts that relate to that campaign.

For information on other steps you can take, including the importance of submitting public comments, please read our Call to Action.


I Want to Record My Story 

I Want to Write My Story

Questions? Please email us at thearc@arcind.org

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