On July 2, an Indiana mother opened the letter she had dreaded. Medicaid had denied the waiver services her son depended on for nursing care. Her choices were unthinkable: quit her job to provide care full-time or risk her child’s health without the support they’d been promised. This is what “policy change” looks like—not in…
The whiteboard squeaked beneath my marker: “What makes a great leader?” The answers came quickly—bold, confident, brave, honest, funny. Year after year, classroom after classroom, the words changed—but the pattern stayed the same. The one word I believed mattered most—listening—never made the board. Why is that? We often define leadership by volume. Big voices. Big…
The Big Beautiful Cost of Medicaid Cuts There are moments when policy becomes personal. This is one of them. Medicaid cuts in Indiana are no longer theoretical—they are active, expansive, and alarming. These aren’t just budget adjustments. These are structural decisions that will affect how we educate, how we care, how we feed, and how…
I still remember where I was sitting when my brother told me he was gay. We were teenagers—just beginning to find our footing in a world that rarely explained itself to us. Growing up in the Midwest in the 1980s, I lived in a bubble of sorts. We were surrounded by cornfields, church pews, and…
In this heartfelt post, Marya reflects on her journey in raising her two sons following her younger son’s autism diagnosis. With years of perspective, she shares honest insights and helpful resources for families and siblings walking a similar path. I want to begin this post in full transparency. I didn’t do it perfectly. In fact,…
I didn’t set out to be an advocate. I was just a mom trying to get my son what he needed—a quiet place to regroup, a teacher who understood, a little more time to get from here to there. But what started as a conversation turned into a calling. Because every time I spoke up,…
A reflection on what it means to hold onto hope when the systems we trust begin to unravel—and how our belief in what is possible must carry us forward. Hope is not always easy. I almost didn’t write this post. I sat in stillness, unsure whether I had the right words—or the emotional stamina—to speak…
Noah Upchurch, Advocacy Specialist & Self-Advocates of Indiana Administrator In April, some of us at The Arc of Indiana and Self-Advocates of Indiana had the opportunity to attend the Disability Policy Seminar in Washington D.C., along with 700 other disability advocates from across the country. Here are some reflections from me, Shawn Fulton, Advocacy Engagement…
Disability rights advocates and mental health professionals — including Tom Crishon of The Arc of Indiana — gathered in Indianapolis on May 12th to speak out against the scheduled May 20th execution of Benjamin Ritchie, who has extensive brain damage due to partial fetal alcohol syndrome and exposure to multiple neurotoxins. Indiana law prohibits the…