Helpful Resources & Links
About Special Kids (ASK) – An organization where parents, professions, and volunteers work together to support children with special needs by providing information, peer support and education.
Affordable Care Act Communication Directory – A quick reference guide developed to direct individuals to appropriate resources regarding the Affordable Care Act.
American Association on Intellectual and Developmental Disabilities – Offers a broad range of information regarding disability, including online journals, governmental policy information and online seminars.
ActEarlyIndiana – The Act Early Indiana website is a collaboration with Riley Child Development Center at IU School of Medicine, The Indiana Resource Center for Autism, The Arc of Indiana and the Autism Society of Indiana as part of a partnership with the Centers for Disease Control and Prevention. The website helps families understand the early signs of ASD, locate services, and provides a list of ABA providers in Indiana.
Autism Now – A national initiative of The Arc, Autism NOW is a source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families.
Autism Society of Indiana – State chapter of the Autism Society of America.
Autism Speaks – A national organization that works to fund research into the causes, prevention, treatments and a cure for autism; increases awareness of autism spectrum disorders; and advocates for the needs of individuals with autism and their families.
Best Buddies Indiana – Dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.
Blumberg Center – The Blumberg Center for Interdisciplinary Studies in Special Education was established to encourage the interdisciplinary study of persons with severe disabilities to those who are gifted and talented. Our services include family and educational support through dissemination of information, onsite visits, and workshops.
Brain Injury Association of Indiana – Dedicated to creating a better future by reducing the incidence and effects of brain injury through public and professional education, advocacy and support, and by facilitating inter-agency commitment and collaboration.
Center for Deaf and Hard of Hearing Education – The Center for Deaf and Hard of Hearing Education (CDHHE) was established in 2012 to support parental choice, including the full continuum of communication options (including American sign language, other forms of sign language, cued speech, listening and spoken language (oral), or any combination of these skills) and with the goal to ensure that children who are deaf and children who are hard of hearing acquire optimal language skills and academic abilities, regardless of the mode of communication used.
Center for Youth and Adults with Conditions of Childhood – Provides consultative services for youth and young adult patients 11-22 as well as adult patients with developmental disabilities and serious chronic illness.
Council for Exceptional Children (CEC) – CEC is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
- DADS – Dads Appreciating Down Syndrome – Assists and supports fathers and families of people with Down syndrome.
- Down Syndrome Indiana
- Down Syndrome Association of Northeast Indiana
- Down Syndrome Association of Northwest Indiana
- Down Syndrome Louisville
- National Down Syndrome Society
- National Down Syndrome Congress
Disability Legal Services Indiana – Provides free and low-cost legal services to children and adults with disabilities in Indiana.
Easterseals Crossroads Assistive Technology Center – The Assistive Technology Center at Easter Seals Crossroads provides assistive technology, equipment and services to individuals with disabilities.
Epilepsy Foundation of Indiana – The Epilepsy Foundation of Indiana leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.
Family Voices Indiana – Shares advocacy opportunities and updated information on issues that impact Indiana families of children with disabilities or special needs.
Fetal Alcohol Syndrome/National Organization on Fetal Alcohol Syndrome (NOFAS) – NOFAS provides information and resources on Fetal Alcohol Spectrum Disorders (FASD) and the risks associated with drinking alcohol during pregnancy.
Fragile X/National Fragile X Foundation – The National Fragile X Foundation takes a comprehensive approach to helping families and individuals impacted by Fragile X-associated Disorders (FXD).
Fragile X / FRAXA Research Foundation – FRAXA Research Foundation provides Fragile X information, resources, family communities, and research.
Governor’s Council for People with Disabilities – The Governor’s Council for People with Disabilities aims to promote public policy that leads to the independence, productivity and inclusion of people with disabilities in all aspects of society. For people interested in learning how to be an advocate, the council offers a Partners in Policymaking course once a year. The council may also provide financial assistance for people with disabilities who wish to participate in conferences or workshops.
Hands in Autism – The HANDS in Autism® Interdisciplinary Training and Resource Center offers innovative, research-based, and practical training and technical support as well as customizable live and online trainings, interactive workshops, onsite coaching and consultations, and intensive hands-on trainings. HANDS also offers a large collection of tools and resources ready for implementation across home, education, and community settings.
Hydrocephalus Association – The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them.
INARF – INARF is the principal membership organization in Indiana representing providers of services to people with disabilities.
Indiana Association of Behavioral Consultants (IN-ABC) – Through professional advocacy, support and development, IN-ABC promotes effective, ethical and quality behavioral services.
IN-APSE – Works to improve and expand integrated employment opportunities, services, and outcomes for persons experiencing disabilities.
INDATA – Assistive Technology – Provides a variety of assistive technology services including:
- Computer access evaluation
- Job accommodation services
- Augmentative communication
- Home modification evaluation
- Adaptive driving services
- Seating and positioning evaluation
- In-home low vision services
- Deaf community services
Indiana Disability Rights – Created in 1977 by state law to protect and advocate the rights of people with disabilities. Staff includes disability rights advocates and attorneys who have the authority to pursue appropriate legal and administrative remedies on behalf of people with disabilities, to ensure the enforcement of their rights.
Indiana Institute on Disability and Community – The Institute works to build community capacity through its collaborative efforts with institutions of higher education, state and local government agencies, community service providers, persons with disabilities and their families, and advocacy organizations. The work of the Indiana Institute is carried out in Centers which address the following issues:
- Early intervention and Education
- School improvement and Inclusion
- Transition, Employment, and Careers
- Aging-related Change
- Planning and Policy Studies
- Disability Information and Referral
- Autism Spectrum Disorders
- Individual and Family Perspectives
IN*SOURCE – The mission of IN*SOURCE is to provide parents, families and service providers in Indiana the information and training necessary to assure effective educational programs and appropriate services for children and young adults with disabilities.
- National Resource Center for Supported Decision Making
- It’s My Choice Future Planning Guide
- Supported Decision Making
- The Arc Master Trust
- FAQ for Representative Payees
National Conference of Executives of The Arc (NCE) – NCE is a dynamic peer membership organization of chapter Executive Directors and other program and administrative staff. NCE creates opportunities for the exchange of ideas, provides the training that is essential in professional development, and offers support and mentoring for successful leadership.
NICHCY – National Dissemination Center for Children with Disabilities – National resource center providing information on:
- Disabilities in children and youth
- Programs and services for infants, children, and youth with disabilities
- IDEA, the nation’s special education law
- No Child Left Behind
- Research-based information on effective practices for children with disabilities
PACER Center – The mission of PACER Center (Parent Advocacy Coalition for Educational Rights) is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
It is a resource for quality information for parents and professionals.
PATINS Project – The PATINS Project is a state-wide technical assistance network for the provision of assistive/accessible technology for assisting local educational agencies in the utilization and creation of accessible learning environments and instructional materials.
PKU/National PKU Alliance – The National PKU Alliance works to improve the lives of families and individuals associated with PKU through research, support, education and advocacy, while ultimately seeking a cure.
Prader-Willi Syndrome Association – Provides support services and information for families and people with PWS.
Rett Syndrome/National Rett Syndrome Association – The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Rights of People with Disabilities
- Advocate’s Guide on Assisting Victims and Suspects/Defendants with Intellectual Disabilities
- Stop the Use of the “R” Word – The Arc Respect PSA
- Spread the Word to End the Word
Self Advocates of Indiana – Statewide organization run by and for people with developmental disabilities. SAI helps people to learn, to speak for themselves, and to serve their communities.
Sexual Abuse & Prevention
- Protecting Your Child from Sexual Abuse – A Guide for Parents of Children with Special Healthcare Needs
- Disability and Abuse Project
- Risk Reduction Workbook for Parents and Service Providers
- Nursing Home Abuse Guide
- Shaken Baby Syndrome/National Center on Shaken Baby Syndrome – The mission of the National Center on Shaken Baby Syndrome is to educate and train parents and professionals, and to conduct research that will prevent the shaking and abuse of infants in the United States.
Special Olympics Indiana – Provides year-round sports training and athletic competition in more than 20 Olympic-type sports for children and adults with intellectual disabilities. Part of the international network of accredited Special Olympics Programs.
Sunny Start – The Indiana State Department of Health’s Sunny Start: Healthy Bodies, Healthy Minds initiative is a statewide effort to support a coordinated system of resources and supports for children, birth – five, and their families. In collaboration with Family Voices Indiana, Sunny Start offers a series of fact sheets to aid families in locating and understanding important resources to assist them and their children, including those with special healthcare needs.
Fact Sheets – English Fact Sheets – Spanish
The Arc US – The Arc of the United States is the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.
United Cerebral Palsy – UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
United Cerebral Palsy Association of Greater Indiana – Works to advance the quality of life for people who have cerebral palsy and prevent its causes.
VSA Indiana – The mission of VSA Indiana is to provide access to lifelong learning and creative expression through the arts for people with disabilities in Indiana.
Williams Syndrome Association (WSA) – WSA provides a comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators.
Yellow Pages for Kids (Indiana)
The Yellow Pages for Kids with Disabilities provides information on educational consultants, psychologists, diagnosticians, health care specialists, academic tutors, speech language therapists, advocates, and attorneys. You will also find government programs, grassroots organizations, special education schools, and parent support groups.