What Individuals, Families, and Guardians Need to Know Medicaid Waivers (also called Home and Community-Based Services) provide Medicaid health coverage, as well as supports and services that help people with disabilities live at home and participate in their communities. The Centers for Medicare and Medicaid Services has approved several updates to Indiana’s Medicaid Waiver programs that take effect December 31, 2025. …
Indiana’s Bureau of Disability Services (BDS) has launched a review process of high-cost Medicaid Waiver service plans, and has also issued guidance on transportation. High-Cost Waiver Service Plans BDS has issued advisory memos for providers and families regarding review of high-cost Medicaid Waiver service plans. BDS’s memo states, “BDS is taking a proactive look at…
Indiana Family and Social Services Administration (FSSA) Secretary Mitch Roob has announced the recommendations of the Applied Behavior Analysis (ABA) Working Group, convened earlier this year to address the rapid growth and sustainability challenges of Medicaid-funded ABA therapy. The Working Group’s Process The ABA Working Group was led by FSSA Deputy Secretary Eric Miller and…
I remember the sound of the clock ticking in the principal’s office. The smell of floor wax and pencil shavings. And that small table—just big enough for two embarrassed children trying not to exist. Before free and reduced lunches were available, my brother and I were asked to sit there every day, just outside the…
In honor of Down Syndrome Awareness Month WHERE IT BEGAN October invites us to reflect on what inclusion truly means—not as a slogan, but as a practice of care, compassion, and thoughtful design. This month, as we celebrate Down Syndrome Awareness Month, I want to share the personal story that inspired the Safe Parks Plus…
October is National Disability Employment Awareness Month — a time to celebrate the talents, aspirations, and dignity of people with disabilities in the workforce. Across Indiana, individuals with autism, intellectual and developmental disabilities, and other challenges are ready, eager, and highly capable of meaningful work — if we as a society continue to clear away…
Our stories hold power. When we choose to share them—even the most painful ones—we transform personal suffering into collective advocacy. Speaking out is how silence breaks, how systems change, and how children are finally protected. This month, I will release a new book, “14 Minutes: A Call to End Restraint & Seclusion.” Our title comes…
On July 2, an Indiana mother opened the letter she had dreaded. Medicaid had denied the waiver services her son depended on for nursing care. Her choices were unthinkable: quit her job to provide care full-time or risk her child’s health without the support they’d been promised. This is what “policy change” looks like—not in…
I didn’t set out to be an advocate. I was just a mom trying to get my son what he needed—a quiet place to regroup, a teacher who understood, a little more time to get from here to there. But what started as a conversation turned into a calling. Because every time I spoke up,…