Advocacy
Safe Parks Plus: A Down Syndrome Story of Safety, Belonging, and Hope
In honor of Down Syndrome Awareness Month WHERE IT BEGAN October invites us to reflect on what inclusion truly means—not as a slogan, but as a practice of care, compassion, and thoughtful design. This month, as we celebrate Down Syndrome Awareness Month, I want to share the personal story that inspired the Safe Parks Plus…
Lifting Up Inclusion — Why Disability Employment Matters More Than Ever (And Why We Can’t Be Distracted by Misinformation)
October is National Disability Employment Awareness Month — a time to celebrate the talents, aspirations, and dignity of people with disabilities in the workforce. Across Indiana, individuals with autism, intellectual and developmental disabilities, and other challenges are ready, eager, and highly capable of meaningful work — if we as a society continue to clear away…
14 Minutes: Why I Chose to Tell Our Story
Our stories hold power. When we choose to share them—even the most painful ones—we transform personal suffering into collective advocacy. Speaking out is how silence breaks, how systems change, and how children are finally protected. This month, I will release a new book, “14 Minutes: A Call to End Restraint & Seclusion.” Our title comes…
Holding On Through the Changes: What Indiana’s Medicaid Shifts Mean for Families
On July 2, an Indiana mother opened the letter she had dreaded. Medicaid had denied the waiver services her son depended on for nursing care. Her choices were unthinkable: quit her job to provide care full-time or risk her child’s health without the support they’d been promised. This is what “policy change” looks like—not in…
Your Story Has Power: How Advocacy Begins in the Everyday Moments We Dare to Speak Up
I didn’t set out to be an advocate. I was just a mom trying to get my son what he needed—a quiet place to regroup, a teacher who understood, a little more time to get from here to there. But what started as a conversation turned into a calling. Because every time I spoke up,…
A Time for Hope: Hope in Times of Uncertainty
A reflection on what it means to hold onto hope when the systems we trust begin to unravel—and how our belief in what is possible must carry us forward. Hope is not always easy. I almost didn’t write this post. I sat in stillness, unsure whether I had the right words—or the emotional stamina—to speak…
It’s Off to Work I Go – Family Advocate Mike Dunn
Mike Dunn’s Story – Since I was young, I have always had a desire to be as independent as I possibly can be. As I approached adulthood, I had a strong desire to work. I am reminded of the song from Snow White and the Seven Dwarfs, “Hi ho hi ho, it’s off to work…
Remembering Ilene Younger Qualkinbush – Our Founding Mother
Ilene Younger Qualkinbush, the “founding mother” of The Arc of Indiana, passed away on May 14, 2020 at the age of 93. Inspired by her daughter Susan, who was born with severe developmental disabilities, Ilene helped establish The Arc of Indiana in 1956. Along with her friend and colleague, Dorothy Burnside, Ilene served as the…
In Difficult Times, Remembering a Founder’s Words
Many years ago, during one of our more trying days at the Indiana General Assembly, I made the trip to Rushville to speak at the Rush County Arc annual dinner. I must admit on that day I was weary, feeling the weight of the people who did not believe in what we were trying to…